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Dani Martinez, chairman of America visited the facilities of the Instituto de Salud Carlos III on Monday 18 October, and met with Don Ignacio Abaitua, senior vice president of the Research Institute for Rare Diseases (pictured).

The meeting has sought the cooperation of both bodies for the promotion of the Registry of Patients with a Rare Disease.

The implementation of this record was one of the measures that had been calling for such partnerships.

The register is accessible from the web: https: / / registroraras.isciii.es

Source: AMER